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Source:https://github.com/SoraKumo001/next-streaming

⬅️ Cure ID App Lets Clinicians Report Novel Uses of Existing Drugs
mdip 6 daysReload
Interesting ... it's presented in the context of drugs for curing infections.

I wonder if this is being used for other drugs. My curiosity stems from personal experience: I had Migraine headaches from age 17 to about 35. I was put on ancient seizure medication that's common prescribed for Bipolar[0] because this doctor had three other patients that it nearly eliminated Migraine from. It was fall, a time when I'd get about one a week. After five days of taking it, I had my first Migraine ... if you could call it that -- I could only identify that it was a Migraine by the aura; the pain was about 10% what I'm used to).

Searching through the web, I found a forum that was filled with Migraine sufferers. Sure enough, there were a handful of people who swore by it. There were also a handful of people who it didn't work for. Looking at the more official sources, there was no indication that this drug could have any effect on Migraine; they listed all of the other off-label uses[1], but Migraine was not among them.

This medication had been in the news several times (and on the front page, here[2]) over the last few years and a year ago (or so), I looked it up on the "official sources", again. It now indicated that it was prescribed for Migraine.

It made me wonder ... how are things like that figured out/communicated down-stream? Is it entirely informally amongst doctors? I went to four different specialists before I found one who suggested this drug -- and he did so in a "half-hearted manner" not truly expecting it would work. It'd be nice if this was centrally tracked/managed as it might surface both "new uses for old drugs" and "new problems with old drugs."

[0] Which I do not have.

[1] It's rarely, if ever, prescribed for what it was originally approved for.

[2] It's Depakote, I'm not being cagey for nefarious purposes, I just didn't want this to be a drug advertisement.


navan 6 daysReload
Just today I read about this in the book "Who is Government" by Michael Lewis where he presents the case on how it can help find cure for rare diseases. You can read his article at https://www.washingtonpost.com/opinions/interactive/2025/mic....

Also highly recommend the book.


shreezus 6 daysReload
There are so many interesting, off-label novel uses for drugs that have already been developed. Recently my wife & I adopted a kitten that developed FIP, a disease caused by a feline coronavirus that was nearly 100% fatal up until just a few years ago.

Turns out, a drug developed by Gilead Sciences (GS-441524) which is the active metabolite of remdesivir, is remarkably effective at treating the disease. It's a nucleoside analog, so it essentially is a slightly modified adenosine molecule which disrupts the virus RNA replication process.

Within 12 hours of the first dose our cat went from dying to making a full turnaround and complete recovery following treatment. For us it was truly a miracle drug, and it only gained awareness recently due to the COVID-19 pandemic [1]. It still isn't technically "approved" for this use case, but is prescribed off-label by vets as of 2024 once the FDA relaxed its position [2]. Folks needed to seek it out on the black market (and still do in some areas).

[1] https://www.theatlantic.com/science/archive/2020/05/remdesiv...

[2] https://www.fda.gov/animal-veterinary/cvm-updates/fda-announ...


CharlieDigital 6 daysReload
Very cool seeing this show up on HN. FDA has a bunch of interested datasets like this that are full of interesting data points.

During COVID, I actually wrote a small sample app that pulls info from this DB: https://www.covidcureid.com/

And gave a talk on it: https://learn.microsoft.com/en-us/shows/azure-serverless-con...


adamredwoods 6 daysReload
I wonder how this is going (started 2013), because I have a hunch it will be chasing ghosts, mostly. Placebo affect is a factor here. I also wonder how many fake leads from "propaganda physicians" they get.